Breast reconstruction aims to restore symmetry and improve quality of life; However, although several morphological assessment methods exist, their need for specialized software, cost, and lengthy processing time reduces their practicality in clinical settings. Recent advances in artificial intelligence have enabled vibe coding, in which clinicians express intent in natural language, and artificial intelligence generates executable code, allowing the development of no-/low-code, clinician-driven software. Using this approach, we created the breast symmetry analyzer (BSA), an end-to-end application that standardizes 3-dimensional morphological analysis. The BSA workflow includes STL import and trimming, automated generation of a virtual chest-wall plane and mirror plane, mirroring and superimposition, vertex-level correspondence, root mean square distance calculation, conversion to a standardized 0%-100% symmetry score, and 3-dimensional color-map visualization. Feasibility was evaluated using a mannequin dataset and a clinical case of latissimus dorsi flap with immediate fat transfer. Each dataset was independently processed 3 times by 2 raters to assess intra- and interrater reproducibility. The BSA successfully produced symmetry scores (83.05% for the mannequin, 87.70% for the clinical case) and color-map visualizations, completing each analysis in less than 45 seconds. Repeated measurements demonstrated minimal variability and excellent reproducibility between raters. The BSA consolidates previously fragmented analytical steps into a single automated workflow, reducing operator dependence and enabling efficient, objective morphological assessment. Beyond this specific application, this study indicates that vibe coding may enable clinicians to translate clinical insight into functional software, potentially transforming them from passive users to active creators in medical technology development.
Ankylosing Spondylitis (AS) is a complex autoimmune disease for which early diagnosis and treatment are critical for prognosis. The quality of health information shared on social media significantly impacts patient education. This study aims to evaluate the quality and completeness of AS-related health information on 2 major Chinese video platforms, TikTok and Bilibili. On August 27, 2025, a cross-sectional study was conducted, retrieving and analyzing the top 100 AS-related videos (N = 200) from each platform. Video reliability was assessed using the DISCERN tool and JAMA, and video quality was assessed using GQS and the 6-Dimensional Content Integrity Scale. Bilibili was found to be significantly superior to TikTok only in academic rigor (defined as information reliability and source transparency, measured by DISCERN-Dimension 1 and JAMA; P < .001), while both platforms performed poorly in practical utility (defined as content completeness and instructional value for patients, measured by GQS and DISCERN-Dimension 2; P > .05). Video "quality" was found to be completely uncorrelated with "popularity" (eg, likes, favorites) (P > .05), while video duration was the only significantly correlated external factor (rho = .41, P < .001). Content completeness exhibited a "cancelation effect" (Referring to the complementary nature of content strengths across platforms where one excels in areas the other lacks. Bilibili excelled in "diagnosis," while TikTok excelled in "treatment"). Notably, orthopedists and other healthcare professionals (HCPs; 59.5%) were the main content creators, not rheumatologists (27%). On Bilibili, the "patient" group scored significantly higher in "treatment information" (Dim2) than the "rheumatologist" group (P = .029). Bilibili provides more academically rigorous AS information, but both platforms severely lack depth in core practical content, and platform algorithms fail to effectively screen for high-quality content (quality-popularity disconnect). The video ecosystem (eg, "orthopedist-dominated" and "professionalism inversion" [a phenomenon where patient-led narratives outperformed specialists in treatment-related metrics due to the inherent structural alignment between comprehensive personal storytelling and traditional assessment criteria].) profoundly reflects real-world diagnostic dilemmas and the limitations of traditional assessment tools in the modern video era.
Patient and public involvement and engagement (PPIE) in research is crucial for producing knowledge that is meaningful to the participating community. Sharing PPIE principles into practical tools and strategies enriches the development of participatory research methodologies. This article describes the co-creation process of ProSafe, a Community-Based Participatory Research (CBPR) project conducted in Italy, which explores community perspectives on the reorganization of territorial healthcare toward proximity care. The aims are: (1) to describe the co-creation process, (2) to examine its successes and challenges, and (3) to propose strategies and practical recommendations for fostering partnerships and engagement throughout all research stages. The project is based on an explanatory sequential mixed-method design. A Patient Safety Council (PSC) acted as a co-researcher. The five-level spectrum of public engagement developed by the International Association for Public Participation (IAP2) guided the analysis of the decision-making power balance between academics and the PSC at each phase. Emphasis was given to the process of survey co-creation. A SWOT (Strengths, Weaknesses, Opportunities, Threats) analysis was performed to identify strategies and practical recommendations to strengthen engagement. The SWOT analysis results informed the development of OPERA-PACT (Opening a Participatory and Equitable Research Agreement based on Partnership, Awareness, Collaboration, and Trust), a framework co-created with the PSC to formalize shared principles, values, and attitudes that sustain collaborative partnerships. The framework also includes a commitment to continuous monitoring, verification, and feedback to reinforce partnership over time. All instruments, strategies, and methodological insights proposed in the article may serve as practical support tools to strengthen the voice of communities in research and to contribute to the production of valid and translational results. Implementing the OPERA-PACT framework may further help align team members with PPIE principles and lay the foundation for effective and sustainable collaboration.
Dietary analysis and advice are key components in the prevention of dental caries. Previous research undertaken at Newcastle University highlighted a lack of cultural competence in dietary advice delivery amongst undergraduate dental and hygiene and therapy students. To co-create, comprehensive educational with students resources to improve dental and hygiene and therapy students' competence in delivering dietary advice to families from a range of cultural backgrounds. Five dental/hygiene and therapy students from diverse cultural backgrounds were employed as student co-creators. Each co-creator was assigned a cultural area of interest and supported to develop a sustainable educational resource that could aid their peers to deliver dietary advice to families from that background. Following this, an evaluation interview was conducted with each co-creator to gain insight into their experience of the process. Co-creators held focus groups with fellow students to identify key foods and drinks consumed within their assigned region, and categorised these into groups based on their sugar content, using a traffic light system. The students used varied approaches to present their resource to their peers. Together, the co-creators developed a 'diet dictionary' that students could refer to in a clinical setting if they encountered a food/drink with which they were unfamiliar. Co-creators valued the experience of contributing to teaching in this way and felt they had developed beneficial skills. Co-creation provided a novel approach to tackle this pedagogical challenge, culminating in the production of sustainable educational resources to improve cultural competence in dietary advice delivery within dental teaching clinics.
Food Noise is a topic of growing interest in media, social media, and reports from patients and clinicians. A theoretical definition of "Food Noise" has recently been established as "heightened and/or persistent manifestations of food cue reactivity, often leading to food-related intrusive thoughts and maladaptive eating behaviors," but research focusing on the lived experiences of people who report experiencing it is limited. TikTok has become a major outlet for content creators to disseminate information on Food Noise, with over 3600 videos under the hashtag #FoodNoise as of June 2024. This study aimed to examine the top videos on TikTok under the hashtag "FoodNoise" and explore what content creators discuss around food noise. We analyzed 100 videos on TikTok under the hashtag #FoodNoise. Video links and metadata (such as engagement metrics) were retrieved on June 24th, 2024. After one duplicated video was excluded, the final analysis included 99 videos. Following pilot testing of the codebook, we conducted a quantitative content analysis of the videos. This study required no ethical approval. The sampled videos had a mean of 1,173,323.63 views, 8,154.57 likes, 246.99 comments, and 582.65 shares. Content creators were primarily female (91.92%), aged 30 or older (82.83%), and White (85.86%). 22.22% of content creators were healthcare professionals, and 70.71% of videos were patient testimonies. 49.49% of videos mentioned medications, mainly GLP-1 receptor agonists. 42.42% mentioned food, mostly candies, desserts, and fast foods. Of the videos that defined Food Noise (82.82%), 93.9% defined it consistently with the current theoretical definition. Most videos (85.86%) depicted food noise negatively. The top content available on TikTok on food noise is mainly comprised of patient testimonies that describe food noise as negative and distressful, and depict the use of medications, mostly GLP-1RAs, as a positive strategy to help manage food noise.
PurposeThe rapid growth of semaglutide use for weight loss has been accompanied by a proliferation of patient-shared experiences and non-evidence-based claims on video platforms. This unchecked information environment poses significant risks to public health, including potential self-medication and misunderstanding of treatment risks, underscoring the urgent need to evaluate the quality of semaglutide-related video content to safeguard digital health literacy. This study assesses the quality, reliability, and user engagement of semaglutide-related short videos on TikTok and Bilibili.ApproachThis cross-sectional study analyzed the top 100 semaglutide-related videos from TikTok and Bilibili, using keyword searches. Videos were evaluated using JAMA benchmark criteria, Global Quality Scale (GQS), and DISCERN tools.SettingRetrieving top 100 videos from TikTok (Mar 4, 2025) and Bilibili (Mar 8, 2025) using "" (Semaglutide) as the search keyword.Participants200 videos and their characteristics.ResultsAmong 200 videos, no statistically significant inter-platform differences in JAMA, GQS or DISCERN scores were observed. Non-professional organizations achieved higher JAMA scores than individual creators (P < .01). Medical information videos scored higher than personal experience content (P < .0001). Engagement metrics (likes) correlated weakly with quality (r = 0.151, P < .05), while longer videos were associated with higher DISCERN scores (r = 0.273, P < .001) but not increased engagement.ConclusionsSemaglutide-related videos on TikTok and Bilibili show moderate quality, with medical professionals and institutions producing more reliable content. However, user engagement remains a poor indicator of quality. These findings call for platform governance to algorithmically promote evidence-based content and verify credible creators, while public health efforts should steer user attention from popularity to credibility, thereby protecting informed decision-making.
With rising kidney stone prevalence in China (currently 7.54%), patients increasingly seek health information through short video platforms like TikTok and Bilibili. However, the quality and reliability of kidney stone-related content on these platforms remains unclear, potentially affecting patient understanding and health decisions. In this cross-sectional study, we analyzed 172 kidney stone videos from TikTok (n=95) and Bilibili (n=77). Videos were categorized by uploader type: professional individuals (67.44%), nonprofessional individuals (22.09%), professional institutions (6.40%), and nonprofessional institutions (4.07%). Quality assessment utilized the Global Quality Score (GQS) and modified DISCERN tool, evaluating content comprehensiveness across six domains: definition, symptoms, risk factors, evaluation, management, and outcomes. Statistical analyses compared platform differences and uploader type variations. TikTok demonstrated significantly higher engagement metrics (median views: 140,255 vs. 10,489; comments: 207 vs. 37; likes: 703 vs. 78) but shorter video duration (53s vs. 121s, p<0.001). Although the median DISCERN score was 2 on both platforms, the distribution was significantly different (p=0.013), with Bilibili videos achieving higher scores (median GQS: 3.0 vs. 2.0, p=0.002; DISCERN: 2.0 vs. 2.0, p=0.013). Professional institutions produced highest-quality content across both platforms (GQS: 3.0-4.0; DISCERN: 2.0-3.0), significantly outperforming nonprofessional creators (p<0.001). Content analysis revealed inadequate coverage of comprehensive kidney stone education, with most videos focusing on basic symptoms and management rather than prevention and risk factors. While professional creators maintain higher content quality, overall kidney stone information quality on short video platforms remains suboptimal. Platform-specific differences suggest Bilibili's longer format enables more comprehensive education despite lower engagement. Enhanced content standards and professional creator incentivization are needed to improve kidney stone health education on social media platforms.
The integration of artificial intelligence into clinical practice demands fundamental reconsideration of how we conceptualize diagnosis. Clinical and popular discourse often frames diagnosis as a "virtuoso model" emphasizing individual physician expertise, which inadequately addresses the complexities of human-AI collaboration and overlooks work on its distributed and social dimensions. We propose a pluralistic framework moving beyond this paradigm toward a model better suited for AI integration. Drawing from medical and cultural history, sociological analysis, and cognitive science, we identify four key shifts necessary to reconceptualize diagnosis for the AI context: recognizing diagnosis as distributed cognition rather than simply individual virtuosity; embracing metacognitive awareness for human-AI collaboration; acknowledging patients as diagnostic co-creators rather than passive subjects; and understanding diagnosis as contextual and culturally situated. Successful AI integration requires moving beyond viewing AI as threat or efficiency tool toward reconceptualizing diagnosis as a collaborative, technologically-mediated activity where clinicians function as interpreters, patients as co-creators, and AI as specialized partners with transparent limitations. This framework demands new approaches to medical education and human-computer interaction research to realize AI's potential while preserving essential human judgment.
Alcohol-associated liver disease (AALD) is a leading cause of liver disease. Alcohol use disorder is a growing public health problem in the United States. TikTok is a growing source of public health information; such information is not peer reviewed and often does not meet scientific standards. We assessed the quality of AALD information on TikTok. We conducted a retrospective observational study of TikTok videos obtained on March 8, 2024, by searching the phrase "alcohol-associated liver disease." We analyzed video characteristics, engagement, and content. Three physicians independently assessed the reliability and quality of the videos by using the DISCERN tool and the Global Quality Score (GQS), scored from 1 to 5, with higher scores indicating better reliability and quality, respectively. We included 139 videos in the analysis. Video creators/publishers were health care professionals (39.6%), patients and family/friends (35.3%), wellness coaches (22.3%), and others (2.9%). The median (IQR) DISCERN score was 2.0 (1.3-2.7); the median (IQR) GQS score was 2.5 (1.5-3.3), indicating the videos were of low quality. Videos by health care professionals had higher DISCERN and GQS scores (P < .001) than videos by other creators/publishers. Video characteristics did not differ significantly between creator/publisher types. Regression results indicated that videos from health care professionals correlated positively with higher DISCERN and GQS scores, especially when videos were longer. The quality and reliability of TikTok videos on AALD are poor. The public should exercise caution when accessing AALD-related information on TikTok. Health care providers and public health officials should strongly investigate the quality of health information on social media platforms and seek to improve it.
Gallbladder cancer is a highly invasive malignant tumor characterized by challenging early diagnosis and poor prognosis. With the widespread adoption of short-video platforms in China, the public increasingly accesses health information through channels such as TikTok (Chinese version) and Bilibili. However, the quality and reliability of gallbladder cancer-related videos on these platforms have not been systematically evaluated. This study aims to evaluate content characteristics, information quality, and reliability of gallbladder cancer-related videos on TikTok and Bilibili in China, thereby providing evidence-based guidance for optimizing health information dissemination through short video content. A total of 158 videos (99 from TikTok, 59 from Bilibili) were included in the final analysis. We extracted basic information and user interaction data from these videos. Video quality, reliability, and information coverage were assessed using the Global Quality Scale (GQS), modified DISCERN tool (mDISCERN), and Content Completeness Score (CS). Nonparametric statistical methods and chi-square tests were used for data analysis. Regarding general information, Bilibili videos are notably longer (170 seconds vs. 82 seconds, p < 0.001), while TikTok videos achieve higher scores across all engagement metrics (likes: 391 vs. 10, p < 0.001; collections: 110 vs. 9, p < 0.001; comments: 67 vs. 1, p < 0.001; shares: 74 vs. 7, p < 0.001). Regarding uploader types, TikTok predominantly featured specialist physicians (66.67%), while Bilibili primarily showcased knowledge disseminators (33.90%). Regarding quality scores, TikTok videos demonstrated significantly higher mDISCERN scores than Bilibili videos (p = 0.049), while Bilibili videos achieved significantly higher CS scores (p = 0.030). Additionally, the identity of content creators is a key determinant of video quality. Video engagement metrics bear no relation to video quality scores (GQS, mDISCERN and CS). In summary, TikTok videos are more interactive, whereas Bilibili videos tend to be longer and offer more comprehensive content. However, videos on both platforms suffer from insufficient information completeness and inconsistent quality, with popularity failing to reflect scientific accuracy. It is recommended that platforms, healthcare professionals and content creators collaborate to collectively enhance the overall quality and dissemination effectiveness of health information.
TikTok is increasingly used as a source of health information, yet the quality of pessary-related content has not been evaluated. The purpose of this study was to assess the reliability, accuracy, and educational quality of pessary-related TikTok videos using validated tools. This was a cross-sectional quality assessment of TikTok videos that were identified using the search term "#pessary." Key engagement metrics, including likes, views, and comments, were extracted, and content creators were categorized as health care professionals (HCP) or non-HCP creators. To minimize algorithmic bias, a new TikTok account was used for data collection. Two independent reviewers assessed the videos using 4 validated tools: (1) modified DISCERN (mDISCERN), (2) Global Quality Scale (GQS), (3) Video Information and Quality Index (VIQI), and (4) the Patient Education Materials Assessment Tool for Audio-Visual Content (PEMAT A/V). Of 467 videos screened, 59 met inclusion criteria: 43 (72.9%) produced by HCPs and 16 (27.1%) by non-HCPs. HCP videos scored higher across most quality measures, including mDISCERN (median 3 vs 2, P=0.01), PEMAT A/V (median 10 vs 9, P=0.36), and VIQI (median 13.5 vs 11.5, P=0.33). Only 25.4% of videos achieved a GQS score ≥3. No significant differences were observed in views, likes, or shares between HCP and non-HCP videos, though HCP videos received more comments. Pessary-related TikTok content is generally of low quality. Although videos created by HCPs perform better, substantial gaps remain, highlighting the need for more accurate, accessible, and patient-centered information on social media.
This article presents an ethnographic study of the narratives of people with chronic kidney disease about their experiences of illness, which is shared through the podcast entitled "Renalcast: talking about renal life." Using a qualitative approach, the content of the episodes of the first season of Renalcast was analyzed, as well as its promotional material on social networks and, lastly, interviews were conducted with the creators of the project. The research stages made it possible to examine the logic and meanings attributed to the disease, the podcast itself, care practices, and the knowledge of both patients and health professionals. In these dimensions, narrative construction entails a form of dual legitimacy, as it performs a position grounded simultaneously in experience and expertise. The project functions as a tool for health education aimed at the care of people living with a diagnosis of chronic kidney disease and as a space for communication and reciprocal exchange. The results indicate that key podcast features - such as mobility, informal communication, and proximity to the listening audience - were fundamental to the development of "renal" narratives. O artigo apresenta um estudo etnográfico sobre as narrativas de pessoas com doença renal crônica acerca de suas experiências de adoecimento, compartilhadas através do podcast “Renalcast: falando sobre vida renal”. A partir de uma abordagem qualitativa, analisamos o conteúdo dos episódios da primeira temporada do Renalcast, seu material de divulgação em redes sociais e, por fim, realizamos entrevistas com os idealizadores do projeto. As etapas de pesquisa permitiram examinar as lógicas e significados atribuídos à doença, ao podcast, ao cuidado, aos conhecimentos dos pacientes e dos profissionais de saúde, aspectos nos quais a construção narrativa implica uma dupla legitimidade, ao performar uma posição de experiência e expertise. O projeto funciona como uma ferramenta para educação em saúde voltado para o cuidado de pessoas que vivem com o diagnóstico de doença renal crônica e como um espaço para comunicação e trocas recíprocas. Os resultados apontam que as características do podcast de mobilidade, comunicação informal e proximidade com o público ouvinte foram fundamentais para o desenvolvimento das narrativas “renais”. Este artículo presenta un estudio etnográfico sobre las narrativas de personas con enfermedad renal crónica sobre sus experiencias de enfermedad, compartidas por medio del podcast “Renalcast: hablando de la vida renal”. Mediante un enfoque cualitativo, analizamos el contenido de los episodios de la primera temporada de Renalcast, su material promocional en redes sociales y, finalmente, realizamos entrevistas con los creadores del proyecto. Las etapas de la investigación nos permitieron examinar las lógicas y los significados atribuidos a la enfermedad, el podcast, la atención y el conocimiento de pacientes y profesionales de la salud, aspectos en los que la construcción narrativa implica una doble legitimidad, ejerciendo una posición de experiencia y experticia. El proyecto funciona como una herramienta de educación para la salud centrada en la atención de personas con diagnóstico de enfermedad renal crónica y como un espacio de comunicación e intercambios recíprocos. Los resultados indican que las características del podcast, como la movilidad, la comunicación informal y la proximidad con la audiencia, fueron fundamentales para el desarrollo de las narrativas “renales”.
Plantar fasciitis is a common condition that impacts patients' motor function and quality of life. As short video platforms such as TikTok and Bilibili become increasingly popular for information seeking, patients are turning to them for health guidance, yet the quality of this content varies significantly. This cross-sectional study was designed to systematically evaluate the quality, reliability, and content completeness of plantar fasciitis videos on TikTok (Chinese TikTok, Douyin) and Bilibili. A total of 158 videos were collected and assessed using the global quality score (GQS), modified DISCERN (mDISCERN), and JAMA benchmarks, while uploader identity and user interaction data were also analyzed. Compared with Bilibili videos, higher GQS scores were observed for TikTok videos (p = 0.003), whereas no significant between-platform differences were observed for mDISCERN (p = 0.496) or JAMA (p = 0.103). User engagement was also higher on TikTok. Professionally uploaded content, particularly from medical personnel, significantly outperformed videos from nonprofessional sources in terms of quality and reliability (p < 0.001). In terms of content, a significant gap was identified: 91.8% (n=145) of the videos addressed treatment, whereas only 15.8% (n=25) mentioned prevention. Crucially, correlation analysis revealed no significant associations between user engagement metrics (e.g., likes, shares) and GQS, mDISCERN, or content completeness scores. These findings reveal a dual role for short video platforms in plantar fasciitis information dissemination: they not only enhance public access but also risk spreading low-quality content due to inadequate oversight. Enhanced credential verification for health creators, greater involvement of medical institutions in content creation, and improved public education to prioritize verified sources are therefore warranted.
A new community centre in a district with a high amount of equity deserving populations in Halle (Saale), Germany provides a space to design and implement health-related services that reflect the needs and priorities of local residents. Health information often fails to meet existing quality standards. Therefore, strengthening critical health literacy is essential. Co-creation is a participatory approach that addresses needs by involving community members as equal partners in the joint development of ideas, concepts and interventions. The study aims to co-create interventions with residents of the community to promote critical health literacy. The study will be conducted as an iterative co-creation process and feasibility study using both qualitative and quantitative methods, based on the PRODUCES+ framework and guided by the UK Medical Research Council (MRC) framework for developing and evaluating complex interventions. In phase I, co-creators engage in a multi-step co-creation process involving participatory workshops and focus group interviews to explore community health needs, information behaviours and to co-develop tailored interventions. Interest-holders representing local institutions are continuously involved to ensure contextual relevance and sustainability. The co-creation process will be evaluated using the PROSECO framework. In phase II, the developed interventions will undergo feasibility testing and pilot implementation within the newly established community centre, using qualitative and quantitative methods such as think-aloud, observations, interviews and questionnaires. The study is expected to develop interventions that will strengthen critical health literacy and empower residents to make informed health decisions. It will also provide insights into mechanisms and success factors of co-creation.
Adolescence is a time of self-discovery and development, particularly in the domains of relationships and sexuality. The use of screens during adolescence can provide outlets to access sexual health knowledge and peer support but may also expose youth to sexual health risks. To meaningfully assess factors influencing youth sexual health, engaging youth in the development of research survey tools is critical. Applying a youth participatory action research approach, this paper describes the process of co-designing a survey that integrates the present-day experiences of youth to evaluate the potential impacts of screen use on subsequent sexual health attitudes, behaviours, and risks. Two youth co-principal investigators were engaged from the onset of the study and contributed to the recruitment of six additional youth researchers. A training curriculum was co-designed; the multi-day sessions equipped the youth researchers to develop the survey. Existing validated surveys and literature were screened for potential survey questions, and smaller working groups deliberated to reach consensus on included questions and modifications. The youth researchers created a survey that consisted of nine sections: gender and sexual orientation, media and communication, sources of sexual health information and attitudes, relationships and dating, sexual activity, sexual knowledge and attitudes, dating apps, cybersex, and pornography. The team developed new questions on social media platforms, self-image, and sexual activity consent. Embedding youth in sexual health research beyond the role of advisors, but rather as co-creators, facilitates the generation of research tools that are relevant and culturally informed for adolescents. RéSUMé: CONTEXTE: L’adolescence est une période de découverte de soi et de développement, notamment dans les domaines des relations et de la sexualité. L’utilisation des écrans durant l’adolescence peut offrir des occasions d’accéder à des connaissances en santé sexuelle et à du soutien entre pairs, mais elle peut également exposer les jeunes à des risques liés à la santé sexuelle. Afin d’évaluer de manière significative les facteurs qui influencent la santé sexuelle des jeunes, il est essentiel de les mobiliser dans l’élaboration des outils de sondage en recherche. OBJECTIF: En adoptant une approche de recherche participative axée sur les jeunes, cet article décrit le processus de cocréation d’un sondage qui intègre les expériences contemporaines des jeunes afin d’évaluer les répercussions potentielles de l’utilisation des écrans sur les attitudes, les comportements et les risques ultérieurs en matière de santé sexuelle. MéTHODES: Deux jeunes coresponsables principaux de la recherche ont été mobilisés dès le début de l’étude et ont contribué au recrutement de six autres membres de l’équipe de recherche. Un programme de formation a été cocréé; les séances, réparties sur plusieurs jours, ont permis aux jeunes membres de l’équipe de recherche d’acquérir les compétences nécessaires pour élaborer le sondage. Des questionnaires validés existants ainsi que la littérature scientifique ont été examinés afin d’identifier des questions potentielles. De plus petits groupes de travail ont ensuite délibéré afin d’atteindre un consensus sur les questions retenues et les modifications à y apporter. RéSULTATS: Les jeunes chercheurs et chercheuses ont conçu un sondage composé de neuf sections: le genre et l’orientation sexuelle, les médias et la communication, les sources d’information en santé sexuelle et les attitudes, les relations et les fréquentations, l’activité sexuelle, les connaissances et les attitudes en matière de sexualité, les applications de rencontre, le cybersexe et la pornographie. L’équipe a également élaboré de nouvelles questions portant sur les plateformes de médias sociaux, l’image de soi et le consentement à l’activité sexuelle. CONCLUSION: L’intégration des jeunes dans la recherche en santé sexuelle, au-delà d’un simple rôle consultatif et plutôt à titre de cocréateurs et cocréatrices, a favorisé l’élaboration d’outils de recherche pertinents et culturellement adaptés aux réalités des adolescents et des adolescentes.
Social media is a common source of health information for children and young adults, yet little is known about how young patients with alopecia engage with hair loss-related content online. Direct-to-consumer (DTC) treatments are also widely marketed for alopecia, but data on their use and perceived effectiveness in pediatric populations remain limited. This study aimed to characterize social media use among patients with alopecia and examine patterns of DTC treatment use. We conducted a cross-sectional survey of patients aged ≤ 25 years with physician-diagnosed alopecia at Boston Children's Hospital dermatology clinics between November 2024 and September 2025. Surveys collected demographics, social media engagement, and use and perceived effectiveness of DTC treatments. Of 115 respondents, 65% reported social media use, with higher use reported in older age groups (90% ≥ 18 years, 72% 12-17 years, 34% < 12 years; p < 0.001). Among users, 59% encountered hair loss-related content, most often on TikTok, Instagram, and YouTube. Many reported uncertainty regarding the qualifications of content creators, and nearly one-quarter rarely or never questioned the accuracy of information presented. Among respondents exposed to hair loss-related content, 28% reported trying a treatment seen online. These treatments were associated with low satisfaction, variable costs ($0-$500+), and side effects including dryness, itching, and increased shedding. Across all respondents, 60% reported ever using at least one DTC treatment, though only 30% were current users. Perceived effectiveness was inconsistent. Social media exposure and marketing of DTC products appear to shape how youth approach alopecia management, although reported experiences were variable and often unsatisfactory. Dermatologists should inquire about online content exposure and DTC product use in clinical care while guiding families toward evidence-based management.
Migration has become a crucial factor influencing social and economic landscapes in the Global North, creating challenges for workplace integration. In this study we describe how supervisor and coworker trust increase work engagement and decrease burnout among migrant workers. The hypotheses were tested with a cross-sectional study based on the Job Demands-Resources (JD-R) theory and using well established questionnaire tools. We showed that secondary level factors: supervisor and coworker trust act either as resources (from β [standardized coefficient] = 0.126, CIs = [0.001, 0.326] to β = 0.302, CIs = [0.184, 0.421] for particular subscales) or demands (from β = -0.090, CIs = [-0.127, 0.025] to β = -0.270, CIs = [-0.298, -0.116] for particular subscales), depending on primary level variables, located in individual and environmental conditions. We further show how the primary level factors influence the aforementioned relationships: host-country language proficiency moderates the relationship between coworker trust and burnout (B [unstandardized measure] = 0.960; CIs = [0.002, 1.918]; f 2 [standardized measure] = 0.242) and that contact with co-national coworkers (B = 0.315; CIs = [0.046, 0.584]; f 2 = 0.215) moderates the relationship between coworker trust and burnout. Results indicate that coworker trust positively predicts work engagement and reduces burnout, particularly for migrants with high host country's language proficiency, irrespective of work's dominant language proficiency. Conversely, limited interaction with co-national coworkers strengthen the effects of workplace distrust on burnout. Our findings suggest that fostering inclusive workplaces and linguistic support may increase migrants' psychosocial well-being. Supporting communication and in particular the development of trust in culturally diverse work environments can increase employee health and wellbeing by decreasing burnout (from 3% to 23% depending on its dimension) and enhancing engagement (from 12% to 23% depending on dimension). The results may also be an insight to organizational and public health policies creators, referring to United Nations' Sustainable 2 Development Goal 3: Good Health and Well-Being and 8: Decent Work and Economic Growth.
TikTok and Bilibili have gradually become important sources for the public to obtain health information. This study aims to evaluate the content, quality, and reliability of varicocele-related videos. We conducted a search on both platforms using the keyword "varicocele" and collected the top 150 videos based on the default rankings, along with video duration, engagement metrics, uploader identity, and video content. Videos were assessed using the global quality score (GQS) and modified DISCERN (mDISCERN) scales. Mann-Whitney U tests and Kruskal-Wallis tests were used to compare differences between groups. Spearman correlation analysis was employed to evaluate the relationships between video features, engagement, and quality. A total of 255 videos were included. The content of the videos was primarily focused on treatment (71.37%), with limited coverage of prevention (32.16%). The median GQS score was 3.00 (interquartile range (IQR): 3.00-4.00), and the median mDISCERN score was 2.00 (IQR: 2.00-2.00). TikTok demonstrated a higher GQS score than Bilibili (P < .05). Compared to individual users and non-specialists, videos uploaded by specialists scored higher on both GQS and mDISCERN (P < .05). No significant correlation was found between engagement metrics and either GQS or mDISCERN (P > .05). The quality and reliability of varicocele-related videos are suboptimal, with insufficient coverage of prevention content. Videos uploaded by specialists demonstrated higher quality and reliability. Engagement metrics were not correlated with video quality or reliability. Future platforms should strengthen content monitoring and review processes and provide support for professional creators to enhance the credibility and educational value of digital health communication.
Ovarian cancer is one of the most common and lethal gynecological malignancies, with high mortality rates due to late-stage diagnoses and frequent recurrence. Despite its significant global health impact, public awareness of ovarian cancer remains low, contributing to delayed diagnosis and treatment. The rapid rise of short-video platforms, such as TikTok, Rednote, and WeChat, presents an opportunity to enhance public knowledge and early detection of ovarian cancer. This study analyzed ovarian cancer-related videos from TikTok, Rednote, and WeChat using two validated quality assessment tools: the Global Quality Scale (GQS) and the modified DISCERN (mDISCERN) tool. A total of 220 videos were examined for content quality, thematic coverage, and engagement metrics. The videos were categorized into themes such as epidemiology, etiology, symptoms, diagnosis, treatment, complications, and maintenance therapy. Additionally, user comments were analyzed to assess public sentiment toward the videos. The study also examined the correlation between video quality and audience engagement. Videos on TikTok demonstrated the highest quality in terms of accuracy and engagement, followed by Rednote, with WeChat videos showing the lowest quality. A significant gap was observed in the coverage of critical topics such as complications and maintenance therapy, with many videos providing only partial information. Specialist-created videos scored higher in quality compared to those created by non-specialists and individual users. Moreover, higher-quality videos were associated with greater audience engagement, including more likes, shares, comments, and collections. Positive sentiment in user comments was most strongly correlated with videos focusing on treatment and maintenance therapy. This study reveals significant quality variation in ovarian cancer videos across Chinese platforms. To enhance public health communication, content accuracy must improve, with a focus on professional creators and key topics like complications and maintenance therapy.
Wilson disease (WD), a rare autosomal recessive hereditary disorder of copper metabolism that requires lifelong management and patient education. Short video platforms have become major channels for health information dissemination in China, but the quality and reliability of content related to Wilson disease on these platforms have not been systematically evaluated. A cross-sectional study design was adopted, and a total of 153 short videos related to Wilson disease were collected from three platforms: Bilibili, Douyin, and Kuaishou. On January 18, 2026, information quality and reliability assessment was conducted over two days using three validated evaluation tools: GQS for quality assessment, and the mDISCERN and JAMA benchmarks for reliability assessment. Meanwhile, user interaction indicators and video characteristics were extracted. Chi-square test, Kruskal-Wallis H test, and Spearman correlation analysis were used for statistical analysis. Videos on Bilibili achieved the highest scores in all three evaluations: GQS (3.34 ± 1.34), mDISCERN (2.84 ± 1.31), and JAMA (2.34 ± 1.24), followed by Douyin and Kuaishou. Among video creators, science communicators had the highest video scores (GQS: 4.40 ± 0.55), rather than health professionals (GQS: 2.91 ± 1.08). Videos with comprehensive themes covering "etiology, symptoms, and treatment" had higher quality scores (GQS 3.45 ± 1.17) and user interaction indicators than those with single themes. There was no correlation between video quality and interaction indicators, but a certain correlation existed between video quality and video duration. There are significant differences in the quality of content related to Wilson disease across different short video platforms, with Bilibili providing the most reliable information. Uploads by health professionals and comprehensive theme content are associated with higher information quality. Measures should be formulated according to the characteristics of different platforms to promote credible health information on Wilson disease, so as to assist patient education.