"It Wasn't Nonadherence": Administrative Workload for Families and Inequitable Outcomes.

内容摘要

Administrative workload, the work required to understand systems and complete tasks and associated with navigating complex care for families, is an underrecognized yet powerful driver of inequity in pediatric hospital care. We present the case of Mateo, a 7-year-old child with medical complexity admitted with respiratory distress whose hospitalization and subsequent readmission were shaped not by caregiver disengagement but by the cumulative effects of fragmented systems, language barriers, and administrative demands placed on his family by the complex health system. Despite attentive caregiving, Mateo's mother encountered unreliable transportation, job-related pressures impacting her ability to attend appointments, inconsistent interpreter use and incomplete explanations, and limited institutional ownership of care coordination. These challenges were repeatedly reframed in the medical record as "nonadherence" and "inconsistent follow-up," contributing to moralized interpretations of risk and consideration of punitive responses rather than supportive interventions. Using this case, we examine administrative workload as a structural driver of health and a mechanism through which inequities are produced and reinforced. We describe how routine hospital processes, such as scheduling, prior authorizations, discharge planning, and documentation practices, externalize complexity to families least resourced to absorb it. We situate these dynamics within broader historical and policy contexts that shape surveillance, deservingness, and accountability in health care systems. Finally, we outline actionable interventions to reduce administrative workload as an effort to promote equity, with a focus on the role of pediatric hospitalists. These include reframing documentation, redistributing coordination tasks across teams, and standardizing hospital processes. Recognizing and addressing administrative workload is essential to improving patient safety, preventing avoidable harm, and advancing equity in pediatric hospital care and beyond discharge.