["Bringing one's own unique perspective into research" - Participants' experiences and perceptions regarding the implementation of a citizen advisory board in general practice research].

内容摘要

Participatory health research has gained importance in general practice research in Germany. This paper is based on a study examining the implementation of a public advisory board established in 2022 by the Institute of General Practice at Erlangen University Hospital. We focus on the perspectives of participating citizens, their experiences, expectations, and motivation regarding their involvement. The article highlights key success factors for participatory formats in general practice research from the viewpoint of those involved and provides practical recommendations for their implementation and long-term integration. Data was collected using methodological triangulation, combining participant observations of 16 advisory board meetings and five semi-structured interviews with board members. Sociodemographic data was also collected. The qualitative data was analysed using the content-structuring approach to qualitative content analysis according to Kuckartz, employing a category system developed both deductively and inductively. Participants described their involvement as meaningful, enriching, and intrinsically motivated. They emphasised a desire to share their personal experiences, gain insight into research processes, and endorse the societal relevance and applicability of research. Simultaneously, some members wished for more specific opportunities regarding participation and a clearer definition of their roles within the format. Although financial compensation was not an issue of primary concern to participants, it was still seen as a gesture of appreciation. Moreover, especially the composition of the board, the distribution of roles, communication pathways, and feedback on outcomes proved to be crucial for acceptance and effectiveness of the format from the citizens' perspective. The findings indicate that citizens are willing to engage in general practice research if transparent structures, feedback mechanisms, and flexible opportunities for involvement are established. For participation to be effective in the long run, institutional and financial support, clear definitions of roles, and continuous reflection on participatory practices are essential.